It's okay. It's very basic — I feel like I've already read most of this on medical websites, just with nicer words. It didn't tell me much new about the disease, but I can see how it might help someone who has never heard of any of this before. The tone is friendly; I just wish it had gone deeper.

I bought this the night my daughter was diagnosed and went from crying to actually breathing again. The part that got me was the chapter on feeling like a bad gene-person — it took that guilt and set it down gently. It doesn't fix anything, but it makes the terrifying week-hour a bit less awful. Worth it for that alone.