The Unprofessional Guide to primary congenital glaucoma

It's fine, it's helpful, but I was hoping for a bit more on alternative treatments. The book does a good job with the basics and I definitely understand the condition better now, but I felt like some sections were shorter than I needed them to be. That said, the tone is friendly and not scary, which counts for a lot when you're crying in the waiting room.

I was completely lost after my daughter's diagnosis — the doctor used words like 'trabeculotomy' and I just nodded while my brain static-ed. This guide finally explained it in plain English. It's honestly not the warmest book ever written, but it's exactly what I needed to feel less stupid at the next appointment. The section on what to ask made me feel like I had a translator in my pocket.

As a grandmother trying to understand what my grandchild is going through, this was so accessible. I loved that it didn't talk down to me but also explained everything clearly. The chapter on why this happened helped my daughter stop blaming herself for every little thing she did during pregnancy. That alone was worth the read.

Decent guide, but I wish it had more technical detail in the treatment chapter. I'm the kind of person who wants to know exactly how the surgery works, and this was a bit too high-level for me. Still, the chapter on being a caregiver was spot-on and made me feel seen. I'd recommend it to anyone just starting this journey.

We got the diagnosis last month and I felt like I was drowning in information from Google. This guide gave me a calm, clear path to understanding. I appreciated that it was honest about the uncertainty but didn't catastrophize. My wife and I both read the first chapter together and actually felt better after — that's a win. It's not a cure, but it's a lifeline.

This is the book I wish we had when our son was diagnosed four years ago. It's warm without being fake, honest without being terrifying. The chapter on what to expect at appointments was exactly what we needed back then. I bought it for a friend whose baby just got diagnosed, and I know she'll feel less alone because of it.

Helpful, no-nonsense, and easy to read in one sitting (which is all the time you have with a newborn). I really appreciated the caregiver chapter because I was so focused on my baby that I forgot to check in on myself. It's not a groundbreaking medical text, but it doesn't need to be. It's a friend explaining things clearly on a bad day.

As an adult diagnosed later in life (which I didn't even know was possible), I felt like this book was written for me. It validated my fears while giving me practical steps forward. The note about not blaming yourself hit me hard — I'd carried guilt for years for something I had no control over. This guide is a compassionate, clear-eyed companion.