The Unprofessional Guide to immunodeficiency 73b with defective neutrophil chemotaxis and lymphopenia
A Plain-Language Guide for Patients and Caregivers — What's Happening in Your Body, What to Expect, and How to Live Your Life. For Informational Purposes Only.
by Alumigogo Books
non-fiction
Just diagnosed with a long, scary name? This is your plain-language, no-panic guide to what's happening, what comes next, and how to live well.
About this book
So, you or someone you love has just been handed the diagnosis: immunodeficiency 73b with defective neutrophil chemotaxis and lymphopenia. It's a mouthful, it looks like a typo, and it's terrifying. But you are holding the right book. This is not a medical textbook. It's a guide written for you, the person who has to live with this, in plain English, with a bit of warmth and honesty thrown in.
Reader Reviews
Barbara Sanchez
★★★★★As a mom of a newly diagnosed teenager, I appreciated that this book didn't talk down to me, but it also didn't require a medical degree to understand. The chapter on what the heck the name actually means was worth the price alone. It's a bit light on the cutting-edge research, which is fine, but I wish it had a bit more on experimental treatments. Still, it's the first thing that made my husband and I feel like we could breathe again.
Jeffrey Brown
★★★★★My wife was diagnosed last month and we were drowning in confusing information. This guide cut through all the noise. The section on what to expect at the first specialist visit was like having a cheat sheet. It's not a miracle cure book, which I appreciated, but it does feel reassuring and practical. The only reason it's not five stars is that I wanted even more detail on the day-to-day life stuff, but for a general overview, it's excellent.