The Unprofessional Guide to Finnish type amyloidosis
What You Need to Know — A Plain-Language Guide for Patients and Caregivers, For Informational Purposes Only
by Alumigogo Books
non-fiction
A clear, compassionate, and jargon-free guide to Finnish type amyloidosis — for the scared patient and the confused caregiver.
About this book
So you or someone you love has just been diagnosed with Finnish type amyloidosis. You're probably sitting with a head full of questions and a stomach full of dread. The doctor used words that sounded foreign, the internet gave you nothing but worst-case scenarios, and the brochure they handed you at the clinic might as well have been written in another language. This guide is here to change that.
Reader Reviews
Kevin Rivera
★★★★★This guide is okay. I found the first chapter genuinely comforting — it explained things in a way my doctor never did. But I wish it had gone deeper on the genetics, since that's what kept me up at night. It's a fine starting point, but I still needed to look elsewhere for more. Also, the chapter titles make it sound funnier than it is, but at least it's not doom and gloom like everything else I found.
Amy Clark
★★★★★I bought this for my dad after his diagnosis, and honestly it helped more than the hospital pamphlet. The symptom table in Chapter 3 was really useful — we finally knew what to watch out for. Chapter 6 on day-to-day life was the most practical. I knocked off one star because I wanted more info about what to say to the rest of the family, but overall I'm glad I got it.
Sarah Thompson
★★★★★I cried in the first ten minutes of reading this — but in a good way. It's the first thing that made me feel like someone actually understands what it's like to hear 'Finnish type amyloidosis' and feel your entire world tilt. The checkpoint at the end of Chapter 1, the questions for the doctor, the part about not blaming myself — it all just felt like a hand on my shoulder. I've read it twice already. I've bought extra copies for my siblings.